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Family quality of life in the context of aging and intellectual disability.

紀錄類型:	書目-電子資源 : 單行本
正題名/作者:	Family quality of life in the context of aging and intellectual disability./
作者:	Jokinen, Nancy Sandra Marie.
面頁冊數:	340 p.
附註:	Source: Dissertation Abstracts International, Volume: 69-12, Section: A, page: .
Contained By:	Dissertation Abstracts International69-12A.
標題:	Gerontology. -
電子資源:	http://pqdd.sinica.edu.tw/twdaoapp/servlet/advanced?query=NR44403
ISBN:	9780494444030

Family quality of life in the context of aging and intellectual disability.
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020 $a 9780494444030
035 $a (UMI)AAINR44403
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100 1 $a Jokinen, Nancy Sandra Marie. $3 1000006590
245 1 0 $a Family quality of life in the context of aging and intellectual disability.
300 $a 340 p.
500 $a Source: Dissertation Abstracts International, Volume: 69-12, Section: A, page: .
502 $a Thesis (Ph.D.)--University of Calgary (Canada), 2008.
520 $a Families are an important source of support for persons with an intellectual disability who, as a group, are experiencing increased longevity due to better health and social care as are their family caregivers. Little Canadian research exists, however, to guide policy and service provision for these families. Nonetheless, a shift in social policy and service delivery as well as demographic changes has elevated the importance of family caregiving in many countries.
520 $a The purpose of this study was to explore family quality of life from the perspective of older-aged parents, siblings, and adults with an intellectual disability. The study took a mixed methods approach with a qualitative theoretical orientation to maximize data collection in a relatively new field of study. All participants were involved in an interview or focus group, and parents and siblings were also asked to complete a survey questionnaire. Participants reflected on family life in retrospect, made comments on the present, and gave a preview of the future from their perspective.
520 $a The study is rich in detail and illustrates important aspects of family quality of life as perceived by participants. Family quality of life was described in terms of relationships and in reference to events that were perceived to have had an impact on those relationships. Issues raised encompass variability in family relations and experiences; the enduring nature of these relationships; the blend of positive perceptions alongside family challenges; and factors that seem to influence relations between families and services. The interactive nature of the family, individual and social environment comes through in the perceptions held by participants and in what seems to maintain, enhance or challenge family quality of life. The positive attributes revealed in the study contribute to the information and question base families and service providers should know about as they work towards maintaining and enhancing quality of life. This may help support both the adult with the intellectual disability as well as other aging family members. The study's methodology has advantages and limitations that are discussed yet offers direction for further study. Recommendations for future research and policy and practice are made based on findings.
590 $a School code: 0026.
650 4 $a Gerontology. $3 168436
650 4 $a Social Work. $3 182351
650 4 $a Sociology, Individual and Family Studies. $3 1000006161
690 $a 0351
690 $a 0452
690 $a 0628
710 2 $a University of Calgary (Canada). $3 1000005708
773 0 $t Dissertation Abstracts International $g 69-12A.
790 $a 0026
791 $a Ph.D.
792 $a 2008
856 4 0 $u http://pqdd.sinica.edu.tw/twdaoapp/servlet/advanced?query=NR44403